FEELINGS AND EMOTIONS IN CASE OF ENDOMETRIOSIS: SUE’S STORY
I’m out and about and then I get the standard question: ‘How are you?’. I give my usual answer: ‘I’m surviving, thank you’. A twitch of an eyebrow. Of course they were expecting and only wanted to hear: ‘Fine, thank you’. But, I don’t like to lie and I also don’t wish to give a ‘case history’, so ‘surviving’ is honestly how I feel. It is also somewhere in between feeling good (‘normal’) and being sick enough to justify being in bed — mind you, often I’d love to be curled up in bed!
Then, you get ‘Oh, but you look fine’. I almost scream with frustration. They’re fishing for an explanation. So, should I explain or not? Well…in the interests of helping them to understand (hopefully), here goes with the justification speech yet again! I spiel off: ‘Well, I’ve got endometriosis (only some know what it is and even less understand the implications) and it is caused by… and it makes you have…symptoms, etc. etc.’. I would usually like to add, but prudently don’t, ‘I look “fine” because…
I have become determined to beat it!’.
the fact is I don’t venture out when I’m really feeling dreadful so you don’t see the real evidence of endometriosis’, or
I’ve taken a painkiller!’
You come away feeling guilty because you don’t look sick enough for them to believe or understand.
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